Life w PD, Treatments, and help

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ShareTweetForwardIn the 07/16/2024 edition:How has Parkinson’s added to your life?Do you struggle with urinary control?Why do you think Parkinsons patients have nightmares?Help-What To Do?Do you find yourself napping more and more?Do you take your carbidopa/levodopa, daytime only, or around the clock?How has Parkinson’s added to your life?Posted on 07/16/2024
Replies: 0I just finished reading the latest column by Jamie Askari about how her husband’s diagnosis of early onset Parkinson’s actually helped to strengthen his relationship with their children, and the bonds within their family as a whole. It got me thinking about how often in life’s challenging times, we can still find some benefit or silver lining. Do you feel that you’ve benefitted in any way from experiencing life with PD? Has it strengthened or added to any parts of your life?You can read Jamie’s column here: https://parkinsonsnewstoday.com/columns/how-difficult-diagnosis-strengthened-family-bonds/parkinsonsnewstoday.comHow a difficult diagnosis strengthened our family bondsIt was devastating when columnist Jamie Askari’s husband, Arman, was diagnosed with Parkinson’s. But it did strengthen family bonds.Join the DiscussionDo you struggle with urinary control?Posted on 07/16/2024
Replies: 48I recently learned that it isn’t uncommon for those with Parkinson’s to struggle with urinary control. In some cases, this might look like we have to run to the bathroom suddenly. Or it might change how we hydrate. Do you struggle with urinary control? If so, how do you manage it?

Join the DiscussionWhy do you think Parkinsons patients have nightmares?Posted on 07/16/2024
Replies: 14My Dad recently told me that he has woken up in the middle of the night punching the air or battling a nemesis of some kind. The nightmares worry him because he doesn’t want to hurt my Mom. Why do you think Parkinsons patients have nightmares? Is this symptom possibly associated with medication? And have you learned how to manage this issue?Join the DiscussionHelp-What To Do?Posted on 07/14/2024
Replies: 10Hello all hard-working caregivers. I need advice, or helping ideas. My husband of 28 years was diagnosed at least 12 years ago, with slow progression. That is, until this last year or so. In the last 90 days he hasn’t gotten out of the bed, except once. He won’t do anything at all to help himself. He won’t try. He just calls from the bedroom (I sleep on the sofa) when he wants food. We are isolated. No friends. I have a kitchen-errands helper about twice a week. I rarely go out. The walls are closing in… What can a person do when the other one isn’t interested in trying???Join the DiscussionDo you find yourself napping more and more?Posted on 07/12/2024
Replies: 10My dad has always had a hard time sleeping solidly. And Parkinson’s has complicated his relationship with sleep. Over the past year or so, he finds himself napping more than usual. And he thinks it’s at least in part to the medication that he takes. How do you manage fatigue? Do you find yourself napping more and more?

Join the DiscussionDo you take your carbidopa/levodopa, daytime only, or around the clock?Posted on 07/11/2024
Replies: 27I was interested in finding out how people are taking their carbidopa levodopa.Ever since I started taking it, I have always taken it around the clock. I think it may be causing me sleep problems as when a dose is due in the middle of the night, I always wake up wide awake at dose time and it takes me 45 minutes to an hour after dosing to get back to sleep. Then I wake up 30 minutes later to urinate as it seems that I always have to urinate after every dose kicks in. Also, I have to wake up to urinate a couple of more times earlier at 11 and 12 midnight after my bedtime dose kicks in.I was wondering if anyone has this problem or has found a way to solve this problem.I am thinking that possibly if I was able to dose during waking hours, I would not have this problem at night.Thanks, and God bless all.Join the DiscussionMore recent forum topics:Caregivers, how do you maintain your independence?
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