Care Partners


November is National Family Caregivers Month

In November we are recognizing and honoring family care partners across the country. Care partners are integral to each Parkinson’s disease journey and while they should be celebrated year-round, now is a great opportunity to give them the special focus they deserve. Throughout the month of November, we will be highlighting APDA resources that support and educate care partners.
Care partner basicsOur Becoming a Care Partner supplement is a great overview full of useful guidance for all PD care partners, including tips for taking care of yourself as well as a helpful list of resources for additional information and support.
Common Care Partner Questions: Care partners are often the ones who notice when a symptom has changed, who cajole their partners to improve their lifestyles and encourage them to follow doctor’s orders, who investigate the newest treatments – in short, to act as another set of eyes and ears along the PD journey. Here are some of the most common questions we receive from care partners, along with our answers.
A Conversation with a Care Partner: In this episode of Dr. Gilbert Hosts, APDA talks with Lianna Marie, a trained nurse, PD care partner, PD advocate and author, for an insightful and personal conversation about navigating care for people with PD.

CARE PARTNER MONTHLY MEETUP

WITH CONNIE CARPENTER PHINNEY

The first Tuesday of every month
12 pm Mountain Daylight Time
(11 am PDT, 1 pm CDT, 2 pm EDT)

If you could use some extra support during these challenging times, please join us for our Care Partner Monthly Meetup. During these one-hour sessions, Connie Carpenter Phinney (and other care partner special guests) will hold some space to discuss the concerns, challenges, and questions that many Parkinson’s care partners have today.

Connie has been a care partner to her husband and our founder, Davis Phinney, since his diagnosis 20 years ago. She has a wealth of knowledge and experience to share, but even more so, as a fellow Parkinson’s care partner, she “gets” you in a way very few people do. So, come with your questions or come just to be in the presence of others who are traveling a similar path. If you need support and are eager to find additional ways to connect with others through meaningful conversations, you’re going to love this hour each month with Connie.

Join us for a virtual event filled with information and inspiration unique to your Parkinson’s journey.

THE VICTORY SUMMIT® VIRTUAL EVENT SERIES

The Victory Summit is going virtual to reach more people than ever before with information and inspiration to live well today. Each event will focus on unique information for your unique Parkinson’s journey.

Sign up to be notified when registration opens for the next event in the series.

During this online event on Saturday, November 13, 2021, you will learn from and interact with Parkinson’s care partner experts, Parkinson’s care partners, and mental wellness professionals who will help you become the care partner your person with Parkinson’s needs without burning out, losing yourself, and losing the joy of life. By the end, you will have a whole new community of support at your fingertips and a toolbox of practices that will help you thrive as a Parkinson’s care partner.

Whether you have just begun caring for someone who has been diagnosed with Parkinson’s, are dealing with a substantial progression of symptoms, or you’ve been caring for someone who has had Parkinson’s for a long time, a strong support network is critical to your own well-being.

The truth is unless you’re a medical professional who has been caring for people as your life’s work, having to step into the role of care partner is a big change and often a significant stressor. And it can take its toll on you – physically, emotionally, spiritually, and otherwise. This can lead to caregiver burnout or in its extreme, compassion fatigue, where you become overwhelmed physically, emotionally, spiritually, and socially to the point where you’re unable to care for yourself or others.

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