New forum topics: DBS side effects


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Parkinson’s News Today <info@parkinsonsnewstoday.com>1:04 PM (1 hour ago)
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View this email in your browserShareTweetForwardIn the 07/18/2024 edition:DBS side effectsAt-home gym essentialsDo you take your carbidopa/levodopa, daytime only, or around the clock?How has Parkinson’s added to your life?What do you think is at the root of your Parkinson’s diagnosis?Do you struggle with urinary control?DBS side effectsPosted on 07/18/2024
Replies: 1I’ve had PD a very long time: diagnosed 21 years ago! Had DBS surgery 2 years ago, did wonderfully at relieving tremors, but unfortunately has been unable to tune, and took away my ability to walk. Has been most frustrating; neuros have tried to tune many times, including reversing polarity. Seems to work in the doc’s office, but tuning goes away in a couple hours to overnight. Advice appreciated!Join the DiscussionAt-home gym essentialsPosted on 07/18/2024
Replies: 28I’m not sure about where you live, but in Ontario, a fourth wave of COVID is looming on the horizon, and I’m nervous the government will shut down gyms again. Thankfully, this time, I’m prepared. My partner and I invested in a bunch of at-home gym equipment last fall/winter. We have a bench, adjustable weights, yoga mats, a kettle bell, a jump rope and some stretchy bands. (We also have a foam roller that sadly spends most of its time collecting dust.)Do you have a home gym? What do you consider essential for your home gym to be functional, equipment-wise? Do you have any advice for purchasing equipment that is affordable and doesn’t take up too much space?Join the DiscussionDo you take your carbidopa/levodopa, daytime only, or around the clock?Posted on 07/17/2024
Replies: 29I was interested in finding out how people are taking their carbidopa levodopa.Ever since I started taking it, I have always taken it around the clock. I think it may be causing me sleep problems as when a dose is due in the middle of the night, I always wake up wide awake at dose time and it takes me 45 minutes to an hour after dosing to get back to sleep. Then I wake up 30 minutes later to urinate as it seems that I always have to urinate after every dose kicks in. Also, I have to wake up to urinate a couple of more times earlier at 11 and 12 midnight after my bedtime dose kicks in.I was wondering if anyone has this problem or has found a way to solve this problem.I am thinking that possibly if I was able to dose during waking hours, I would not have this problem at night.Thanks, and God bless all.Join the DiscussionHow has Parkinson’s added to your life?Posted on 07/17/2024
Replies: 6I just finished reading the latest column by Jamie Askari about how her husband’s diagnosis of early onset Parkinson’s actually helped to strengthen his relationship with their children, and the bonds within their family as a whole. It got me thinking about how often in life’s challenging times, we can still find some benefit or silver lining. Do you feel that you’ve benefitted in any way from experiencing life with PD? Has it strengthened or added to any parts of your life?You can read Jamie’s column here: https://parkinsonsnewstoday.com/columns/how-difficult-diagnosis-strengthened-family-bonds/parkinsonsnewstoday.comHow a difficult diagnosis strengthened our family bondsIt was devastating when columnist Jamie Askari’s husband, Arman, was diagnosed with Parkinson’s. But it did strengthen family bonds.Join the DiscussionWhat do you think is at the root of your Parkinson’s diagnosis?Posted on 07/16/2024
Replies: 67What do you think is at the root of your Parkinson’s diagnosis? Did you work in a profession or live in an area that may have contributed to its onset? Is it hereditary? Join the DiscussionDo you struggle with urinary control?Posted on 07/16/2024
Replies: 50I recently learned that it isn’t uncommon for those with Parkinson’s to struggle with urinary control. In some cases, this might look like we have to run to the bathroom suddenly. Or it might change how we hydrate. Do you struggle with urinary control? If so, how do you manage it?

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